Searching for a Word or a Simple Way For Parents
to Say They’ve Lost a Child
Geraldine Rheingold is an orphan, having lost
her parents in the 1950s. She is also a widow;
her husband died in 1978. But she is something
else – a parent who has lost a child –
and there is no simple word in our language to
describe that.
Mrs. Rheingold’s daughter Didi died of pneumonia
in 1949 at age eight. Though she has another child,
for 53 years Mrs. Rheingold struggled to define
herself after that tragedy. Now, at age 93, these
are the 11 words she chooses: “I was a loving
parent who no longer has that privilege.”
If only our language offered one special word
to encompass that mix of loss and love. Some grieving
parents say they long for such a word, something
they could say when asked, “Do you have
any children?” They yearn for a word that
honors their late child without inviting prying
questions, a few syllables they could deliver
quickly, without choking up.
Surviving parents in growing numbers are talking
about rewriting the language of grief. When
Mrs. Rheingold’s daughter died, there
were no support groups to help her. Now, the
organization Compassionate Friends (www.compassionatefriends.org)
has almost 600 chapters – triple the number
it had in 1980 – serving 300,000 parents
who’ve lost children.
Still, words fail us. “Linguists say that
words reflect how society thinks,” says
psychologist Bob Baugher, who leads grief workshops
around the country. “Because there’s
no word for parents who’ve lost children,
it shows how awkward we feel about them.”
The English language has about 450,000 commonly
used words, but more may be needed. What to you
call someone who has lost a sibling or had a miscarriage?
Or a gay person whose partner has died? Or an
elderly person who has lost every friend and relative?
So many heartaches can’t be found in the
dictionary.
Last year, Susan Giardina’s only child,
her 22-year-old daughter, died from a brain tumor.
People often ask Ms. Giardina if she has children.
“Answering, ‘I had a child who died’
rips my heart out,” she says. But replying
that she has no children “would feel like
a betrayal” of her daughter’s life.
“If I could say, ‘I’m a widow,’
I wouldn’t have to go into details.”
Generations ago, when it was common to lose children
to diseases, people had large families. Language
researchers suspect that society didn’t
want to define parents by their loss. But families
are smaller now, and the loss of one child leaves
a void that can feel more cavernous.
Jeffrey Kacirk, author of “Forgotten English,”
has never come across a word for parents who’ve
lost children. Neither has Mrs. Rheingold’s
son Howard, author of “They Have a Word
For It,” a book about words in other languages
with no English equivalents. When I contacted
him for insights on word derivations, he said
I’d learn more from his mother. Indeed,
Mrs. Rheingold welcomed the chance to talk.
From her home in Mill Valley, Calif., she told
me that when her daughter died, Howard was 17
months old. “Minutes after my daughter died,
my husband and I were crying terribly.”
she recalled. “We held hands across her
bed and said, ‘We won’t talk about
her and how she died. We won’t bring this
sadness into our son’s life.”
They kept the vow for decades. Sometimes, they’d
speak to each other about “the beautiful
red-headed girl we lost.” But to outsiders
and their son, they said little.
Until she was 75, Mrs. Rheingold says, she dreamed
about her daughter nightly, saying nothing to
anyone in the morning. She is relieved that many
parents today are more open about their losses.
“It’s so much healthier.”
Now that parents are talking more, they’re
more aware of the shadings and inferences of language.
Harriet Sarnoff Schiff lost her 10-year-old son,
Robert, in 1968. For years, when people asked
how many children she had, she’d often mention
only her two living children. “Then I’d
cross my fingers behind my back and think, ‘Oh
Robbie, I’m not denying that you existed.’”
She wrote a book in 1977 titled “The Bereaved
Parent,” and some parents now use that phrase
to describe themselves. But it doesn’t work
for Joyce Andrews of Houston. Her 36-year-old
daughter took her own life in 1990. “I wish
there was a word that did not say, ‘I am
continuously sad,’” Ms. Andrews says.
“As time passes, and your grief softens,
you don’t like to put that label on yourself.”
David Pellegrin of Honolulu says losing his son
has shown him “the profound limitations
of words.” He dislikes “closure.”
“People say it with a hint of impatience
in their voices: ‘Have you reached closure
yet?’”
Surviving parents also are troubled by sentences
that begin with “at least.” “When
people say, ‘At least you have another child,’
it never helps,” says Mr. Baugher, the grief
educator. Wayne Loder of Milford, Mich., lost
a son and daughter, ages five and eight, in a
1991 car accident. Among the useless comments
people have made to him: “God wanted more
flowers for his garden.”
For surviving parents “finding the new normal”
means making their own rules. For some, it helps
to talk about their late children to every acquaintance.
Others say that as long as their children are
in their hearts, what they say out loud is less
important.
My in-laws lost a son in 1982. He was 24, and
just beginning a law career. “People who’ve
lost children have a heightened awareness of everything,”
says my mother-in-law, Marilyn Margulis. “Words
are sharper and more meaningful, because you’re
vulnerable and in pain.”
She encourages grieving parents to forgive inappropriate
comments and poor word choices. “People
are clumsy and apprehensive,” she says,
“but whenever they extend their hands to
you in sympathy, understand that what they’re
trying to say is, ‘I’m so sorry.’”
Thanks to a terrific team of volunteers: Francis
Tsao, Rick Martin and Kathleen Roy, our new site
should be up and running by mid-September. Check
it out and let us know what you think.
Volunteer Opportunity:
Do you like to surf the Internet? We are often
asked to “link” to other bereavement-related
sites on the net and we would like to provide
visitors to our site, with links to relevant
and helpful online resources. Would you like
to be on a team of volunteers, who reviews sites
and helps decide what links and resources go
on the BFO-Toronto site? Please call Betty Ann
Rutledge, Coordinator of Volunteer Programs
at 416-440-0290 ext. 11.
Diane
Alexson-Rose
Christopher Michael Antolin
Philip Allen Baudoux
Robert Andrew Bergin
Emma Sykes Chandler
Ashley W. Christopher
Donna Chu
Steven Clarfield
Jonathan and Stephani Clarke
Richard Cumberland
Luc E. D’Amours
Harold Diplock
Greg Doherty
Carrie Evans
Andrew Forbes
Harry (Butch) Freedhoff
Cheryl Elizabeth Gage
Lisa Gilmer
Arianna Harrison
Dylan Hart
Michael Allen Harte
Katherine Elizabeth Henry
Kerry Higgins
Glenn Hills
Jason Ho
Lori Humphreys
Darrell Howard Isenberg
Hester Katz
Paula Kenny
Christopher Knowles
Lara Elizabeth Lee
Stacey Levitt
Courtney Littlefield
Jason Liverseed
Norman
W. Turner
Courtney Trempe
Joseph
Marc Vayda
Kristen Koenig Walter
John David Watson
Martha Weber
Inez
Lopez
Vava Lusthouse
David Lynn
Andrew Mardon
Keely Jaye Marsh
Fred McCabe
Eddie Jamie McCaffery
Christopher McCully
Daniel McGuigan
Christopher Montmarquette
Albert James Morton
Lynn J. Nastamagu
Robyn Alexandra Nettleton
Cathy Nishiyama
Patricia Ostler
Dean Justin Pace
Motilall Persaud
Ian Petroff
Sarah Radcliffe
Paul Norman John Reddick
Tracey Riley Shea and Kerry Riley
Clayton Robb
Emily Senn Robertson
Ian Robson
Fulvio Rosciardi
Sarah Rozencwajg
Hartley Rosenthal
Ryan Scozzese
Ian Anton Shah
George Smrdelj
Andrew and David Stitt
Shane Stradiotto
As part of our current program
evaluation (see back page for more information),
we invite any interested volunteers to attend
a focus group to talk about your experiences with
BFO-Toronto:
Tuesday, September 17, 2002 12:30pm
to 2:30pm or Wednesday, September 18, 2002 6:30pm
to 8:30pm RSVP to Betty Ann Rutledge, Coordinator
of Volunteer Programs at 416-440-0290 ext. 11.
AGM Volunteer Appreciation
At our Annual General Meeting in June, volunteers
were recognized for their contribution to BFO-Toronto.
Thank you and congratulations to the following
volunteers who received special awards:
2001 First Time Facilitators and Advisors:
Parental: Jeanne Gershater, Gaye MacPherson,
Judith McCaffery, Cathy Sloane, Margaret Hodson,
Des Mackle, Sharon Pelletier Virtue, Margaret
Lee Tung
Infant Loss: Suzanne Corker, Carine Blin, Theresa
Wright
Young Adult: Allison Amery, Rena Klisouris
Advisor to Children’s Groups Jennifer Bennett-Pond,
Sally Schoellkopf
Advisors to Parental Groups: Margo Marcus
2001 First Time Board and Committee Members:
Joe Isgro, Grant Caven, Chris Gort
2001 10-Year Volunteers:
Catherine Gilbert - Infant Loss Facilitator
Mary Gural - Office Administration Volunteer
Mark Oakes - Young Adult Facilitator
Adolfo Puricelli - PAC/Board
Gita Dessner - Parental Advisor
Two very special volunteers were also presented
with the annual Noah Thorek Award
in recognition of both the diversity and quality
of their volunteer commitment to Bereaved Families
as well as their longevity as volunteers and the
effectiveness of their volunteer efforts. The
Noah Thorek Award was instituted in 1989 by volunteer
Faye Thorek and her husband Michael, in memory
of their infant son Noah, who died in 1984.
Elaine Gort, current chair of
the Professional Advisory Committee, was presented
the award by Barb Powell. In addition to outlining
Elaine’s many achievements as a Parental
Facilitator, committee and Board Member with BFO-Toronto,
Barb described her as “..Exemplifying the
qualities that BFO engenders and cherishes in
its volunteers. She is committed, caring, creative,
empathetic to others and has given unstintingly
of her time and talents to this organization.”
Elaine’s compassionate leadership has greatly
benefited both volunteers and members and we are
blessed to have her as part of the BFO community.
Christine Littlefield,
past Board chair, was presented the award by Margaret
McGovern. Margaret spoke of Christine’s
many activities with BFO-Toronto: as an advisor
to parental groups, chairing PAC, her work with
the Grief Training Institute and sitting on both
the Toronto and Provincial Board of Directors.
She also spoke warmly of their friendship which
began many years ago: “I first encountered
her when we were both asked to meet with Dr. Stephen
Fleming's class on death and dying at York University.
That evening I learned much about what our family
would experience as a family who had lost a beloved
child. Her compassion and her desire to assist
these students understand the experience of losing
a child and how they could support someone who
is grieving were significant learning opportunities
to me.”
BFO-Toronto's choice for the
Provincial Volunteer Award of 2002 was Faye Thorek.
Again, Margaret McGovern spoke of Faye’s
long time commitment and dedication to BFO-Toronto
including her work facilitating support groups,
working with PAC and sitting on the board. Most
significant was that Faye was instrumental in
the initiating of our Infant Loss Program, as
she recognized that parents who have lost a baby
in the perinatal period have some needs and issues
that parents who have lost an older child do not
encounter. Faye continues to be active in this
program, as well as in supporting other areas
of BFO-Toronto, like our fundraising events.
“Bereaved men are often desperately lost."
So begins the book, Making Meaning of the
Madness –
a journey into a Father’s grief at the loss
of his son Jeff, by bereaved father Dan Lundine.
The dominant theme of this book
is the sense of failure: of being unable to protect,
being unable to change the course of events that
would still leave our lives as they were. Instead
we are thrown into this never-land of fear, self-doubt,
and retreat. Mr. Lundine identifies all the confusion
and anxiety that, while not unique to fathers,
one knows in reading of the madness that he speaks
as a Father of the things we all know but rarely
talk about deeply.
Making Meaning of the Madness
would be a wonderful place from which to start
understanding that a man's feelings (often unexpressed
and rarely encouraged) are as complex, deep and
troubled by loss as anyone else's. We are not
always strong or stoic, we bleed, but there are
unique aspects of our loss that strike at the
core of who we are and which rarely receive validation
- particularly from other men. To read this book
is to understand that private pain that we rarely
share, lest we are overcome.
Whether as a source for individual
guidance or as a primer for a men's group on loss
and grief, Making Meaning of the Madness raises
all the right issues. It is a book from which
one can find solace and hope. For even in the
madness of being alive while your child is dead,
there is still hope of new perspectives and deeper
meanings for the rest of life to be lived.
Des Mackle (Kevin's Dad)
BFO-Toronto Parental Facilitator
Planned Giving Seminar at BFO-Toronto Office
on September 19, 2002 at 7.00 p.m.
Some of our members have been
requesting information on Planned Giving, of which
Bequests are only a part. A Planned Giving Program
is a vehicle for you to ensure that your philanthropic
objectives are met, without significant cost to
family and friends, whom you also want to remember
in your will and it is an investment in BFO-Toronto’s
future. We have, therefore, made arrangements
for a qualified, financial consultant to discuss,
with interested people, the many options (including
tax benefits), that are now available. If you
would like to attend this seminar, please call
our office and speak with our Development Officer,
Adrienne Vance 416-440-0290.
Congratulations!
Brenda (daughter of Betty and
Bruce Catchpole) and her husband Randy Martens
had a baby, Rachael Jane on July 6th. Weighing
in at 8 pounds 2 ounces at birth. We hear that
she looks very much like her 2 year-old brother
(Christopher) did when he was that age.
All are doing well thankfully,
Nana and Papa are glad to be there in Winnipeg
helping them to celebrate this most important
birth.
On June 20, 2002 we held our
23rd Annual General Meeting. BFO-Toronto membership
passed A New By-Law No. One and approved a name
change from Bereaved Families of Ontario –
Metropolitan Toronto to Bereaved Families of Ontario
– Toronto. We said ‘good-bye’
to several Board Members - Allan Cole, who had
been Chair of the Board, Joe Isgro, Mary Gallello
and Irene Clarfield. We thank them all for their
generosity of time and spirit and their commitment
to BFO-Toronto. We also welcomed three new Board
Members – Michael Healy, Lynn Belanger and
Jim Cardinal. John Bickley, was voted in as the
new Chair of the Board. This Board will take BFO-Toronto
into a new year, full of promise and new opportunities.
One of these opportunities is
an assessment of our services and programs, which
will be conducted over the next six months. The
idea originated from our members, at a Strategic
Planning day, held in January of 2001.Through
a grant, submitted by Gloria Murrant, to the Trillium
Foundation, we obtained the financial resources
to hire consultants to do this major and crucial
project. We want to know how we can better support
people, who have experienced a death in their
family, and to do this we will:
Look internally and ask staff, volunteers
and members what works and what doesn’t.
Look externally to find out how we can
better serve the diverse community of Toronto.
We will choose three target communities, with
whom we want to start this consultation process.
In order to obtain the necessary
information, some of you will receive a mailed
survey, some will be telephoned and some will
participate in a focus group. These activities
will provide us with valuable data. We want and
need your perspectives, thoughts and ideas, so
please participate.
Although the past few years have
been difficult for Bereaved Families, in 2003
we will be celebrating our 25th Anniversary. During
this very special year we will be reaching out
to the community; revitalizing established relationships
and building new ones. We will be celebrating
the spirit of survival!
This newsletter is produced
for our members and supporters. Our newsletter
is available by mail and email.
We welcome submissions, please forward to Laura
Larsen (llarsen@bfotoronto.ca).
We reserve the right to edit items submitted for
publication
We are grateful to the
Toronto East Rotary Club
for funding the production of
this newsletter.