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Here are the contents of the August/September newsletter. Click on a title to go to that article, or simply scroll down to read the entire newsletter.

Moving On Volunteer Corner
Volunteer Opportunity Congratulations!
In Memoriam Book Review Dates to Remember


Moving On

By Jeffrey Zaslow, The Wall Street Journal

Searching for a Word or a Simple Way For Parents to Say They’ve Lost a Child

Geraldine Rheingold is an orphan, having lost her parents in the 1950s. She is also a widow; her husband died in 1978. But she is something else – a parent who has lost a child – and there is no simple word in our language to describe that.
Mrs. Rheingold’s daughter Didi died of pneumonia in 1949 at age eight. Though she has another child, for 53 years Mrs. Rheingold struggled to define herself after that tragedy. Now, at age 93, these are the 11 words she chooses: “I was a loving parent who no longer has that privilege.”
If only our language offered one special word to encompass that mix of loss and love. Some grieving parents say they long for such a word, something they could say when asked, “Do you have any children?” They yearn for a word that honors their late child without inviting prying questions, a few syllables they could deliver quickly, without choking up.
Surviving parents in growing numbers are talking about rewriting the language of grief. When Mrs. Rheingold’s daughter died, there were no support groups to help her. Now, the organization Compassionate Friends (www.compassionatefriends.org) has almost 600 chapters – triple the number it had in 1980 – serving 300,000 parents who’ve lost children.
Still, words fail us. “Linguists say that words reflect how society thinks,” says psychologist Bob Baugher, who leads grief workshops around the country. “Because there’s no word for parents who’ve lost children, it shows how awkward we feel about them.”
The English language has about 450,000 commonly used words, but more may be needed. What to you call someone who has lost a sibling or had a miscarriage? Or a gay person whose partner has died? Or an elderly person who has lost every friend and relative? So many heartaches can’t be found in the dictionary.
Last year, Susan Giardina’s only child, her 22-year-old daughter, died from a brain tumor. People often ask Ms. Giardina if she has children. “Answering, ‘I had a child who died’ rips my heart out,” she says. But replying that she has no children “would feel like a betrayal” of her daughter’s life. “If I could say, ‘I’m a widow,’ I wouldn’t have to go into details.”
Generations ago, when it was common to lose children to diseases, people had large families. Language researchers suspect that society didn’t want to define parents by their loss. But families are smaller now, and the loss of one child leaves a void that can feel more cavernous.

Jeffrey Kacirk, author of “Forgotten English,” has never come across a word for parents who’ve lost children. Neither has Mrs. Rheingold’s son Howard, author of “They Have a Word For It,” a book about words in other languages with no English equivalents. When I contacted him for insights on word derivations, he said I’d learn more from his mother. Indeed, Mrs. Rheingold welcomed the chance to talk.
From her home in Mill Valley, Calif., she told me that when her daughter died, Howard was 17 months old. “Minutes after my daughter died, my husband and I were crying terribly.” she recalled. “We held hands across her bed and said, ‘We won’t talk about her and how she died. We won’t bring this sadness into our son’s life.”
They kept the vow for decades. Sometimes, they’d speak to each other about “the beautiful red-headed girl we lost.” But to outsiders and their son, they said little.
Until she was 75, Mrs. Rheingold says, she dreamed about her daughter nightly, saying nothing to anyone in the morning. She is relieved that many parents today are more open about their losses. “It’s so much healthier.”
Now that parents are talking more, they’re more aware of the shadings and inferences of language. Harriet Sarnoff Schiff lost her 10-year-old son, Robert, in 1968. For years, when people asked how many children she had, she’d often mention only her two living children. “Then I’d cross my fingers behind my back and think, ‘Oh Robbie, I’m not denying that you existed.’”
She wrote a book in 1977 titled “The Bereaved Parent,” and some parents now use that phrase to describe themselves. But it doesn’t work for Joyce Andrews of Houston. Her 36-year-old daughter took her own life in 1990. “I wish there was a word that did not say, ‘I am continuously sad,’” Ms. Andrews says. “As time passes, and your grief softens, you don’t like to put that label on yourself.”
David Pellegrin of Honolulu says losing his son has shown him “the profound limitations of words.” He dislikes “closure.” “People say it with a hint of impatience in their voices: ‘Have you reached closure yet?’”
Surviving parents also are troubled by sentences that begin with “at least.” “When people say, ‘At least you have another child,’ it never helps,” says Mr. Baugher, the grief educator. Wayne Loder of Milford, Mich., lost a son and daughter, ages five and eight, in a 1991 car accident. Among the useless comments people have made to him: “God wanted more flowers for his garden.”
For surviving parents “finding the new normal” means making their own rules. For some, it helps to talk about their late children to every acquaintance. Others say that as long as their children are in their hearts, what they say out loud is less important.
My in-laws lost a son in 1982. He was 24, and just beginning a law career. “People who’ve lost children have a heightened awareness of everything,” says my mother-in-law, Marilyn Margulis. “Words are sharper and more meaningful, because you’re vulnerable and in pain.”
She encourages grieving parents to forgive inappropriate comments and poor word choices. “People are clumsy and apprehensive,” she says, “but whenever they extend their hands to you in sympathy, understand that what they’re trying to say is, ‘I’m so sorry.’”

E-mail comments to jeffrey.zaslow@wsj.com

Originally published in The Wall Street Journal, reprinted with permission of the author

Please note our new email and website addresses.

info@bfotoronto.ca

www.bfotoronto.ca

Next issue: October/November

Submission deadline:
Wed. Sept. 11

Mailing:
Wed. Sept. 25


LOOK FOR BFO-TORONTO’S NEW WEBSITE!

Thanks to a terrific team of volunteers: Francis Tsao, Rick Martin and Kathleen Roy, our new site should be up and running by mid-September. Check it out and let us know what you think.

Volunteer Opportunity:
Do you like to surf the Internet? We are often asked to “link” to other bereavement-related sites on the net and we would like to provide visitors to our site, with links to relevant and helpful online resources. Would you like to be on a team of volunteers, who reviews sites and helps decide what links and resources go on the BFO-Toronto site? Please call Betty Ann Rutledge, Coordinator of Volunteer Programs at 416-440-0290 ext. 11.

In Memoriam

Diane Alexson-Rose
Christopher Michael Antolin
Philip Allen Baudoux
Robert Andrew Bergin
Emma Sykes Chandler
Ashley W. Christopher
Donna Chu
Steven Clarfield
Jonathan and Stephani Clarke
Richard Cumberland
Luc E. D’Amours
Harold Diplock
Greg Doherty
Carrie Evans
Andrew Forbes
Harry (Butch) Freedhoff
Cheryl Elizabeth Gage
Lisa Gilmer
Arianna Harrison
Dylan Hart
Michael Allen Harte
Katherine Elizabeth Henry
Kerry Higgins
Glenn Hills
Jason Ho
Lori Humphreys
Darrell Howard Isenberg
Hester Katz
Paula Kenny
Christopher Knowles
Lara Elizabeth Lee
Stacey Levitt
Courtney Littlefield
Jason Liverseed

Norman W. Turner
Courtney Trempe



Joseph Marc Vayda
Kristen Koenig Walter
John David Watson
Martha Weber

Inez Lopez
Vava Lusthouse
David Lynn
Andrew Mardon
Keely Jaye Marsh
Fred McCabe
Eddie Jamie McCaffery
Christopher McCully
Daniel McGuigan
Christopher Montmarquette
Albert James Morton
Lynn J. Nastamagu
Robyn Alexandra Nettleton
Cathy Nishiyama
Patricia Ostler
Dean Justin Pace
Motilall Persaud
Ian Petroff
Sarah Radcliffe
Paul Norman John Reddick
Tracey Riley Shea and Kerry Riley
Clayton Robb
Emily Senn Robertson
Ian Robson
Fulvio Rosciardi
Sarah Rozencwajg
Hartley Rosenthal
Ryan Scozzese
Ian Anton Shah
George Smrdelj
Andrew and David Stitt
Shane Stradiotto

Volunteer Corner

Tell Us What You Think

As part of our current program evaluation (see back page for more information), we invite any interested volunteers to attend a focus group to talk about your experiences with BFO-Toronto:

Tuesday, September 17, 2002 12:30pm to 2:30pm or Wednesday, September 18, 2002 6:30pm to 8:30pm RSVP to Betty Ann Rutledge, Coordinator of Volunteer Programs at 416-440-0290 ext. 11.

AGM Volunteer Appreciation

At our Annual General Meeting in June, volunteers were recognized for their contribution to BFO-Toronto. Thank you and congratulations to the following volunteers who received special awards:

2001 First Time Facilitators and Advisors:

Parental: Jeanne Gershater, Gaye MacPherson, Judith McCaffery, Cathy Sloane, Margaret Hodson,
Des Mackle, Sharon Pelletier Virtue, Margaret Lee Tung
Infant Loss: Suzanne Corker, Carine Blin, Theresa Wright
Young Adult: Allison Amery, Rena Klisouris
Advisor to Children’s Groups Jennifer Bennett-Pond, Sally Schoellkopf
Advisors to Parental Groups: Margo Marcus

2001 First Time Board and Committee Members:

Joe Isgro, Grant Caven, Chris Gort

2001 10-Year Volunteers:

Catherine Gilbert - Infant Loss Facilitator
Mary Gural - Office Administration Volunteer
Mark Oakes - Young Adult Facilitator
Adolfo Puricelli - PAC/Board
Gita Dessner - Parental Advisor

Two very special volunteers were also presented with the annual Noah Thorek Award in recognition of both the diversity and quality of their volunteer commitment to Bereaved Families as well as their longevity as volunteers and the effectiveness of their volunteer efforts. The Noah Thorek Award was instituted in 1989 by volunteer Faye Thorek and her husband Michael, in memory of their infant son Noah, who died in 1984.

Elaine Gort, current chair of the Professional Advisory Committee, was presented the award by Barb Powell. In addition to outlining Elaine’s many achievements as a Parental Facilitator, committee and Board Member with BFO-Toronto, Barb described her as “..Exemplifying the qualities that BFO engenders and cherishes in its volunteers. She is committed, caring, creative, empathetic to others and has given unstintingly of her time and talents to this organization.” Elaine’s compassionate leadership has greatly benefited both volunteers and members and we are blessed to have her as part of the BFO community.

Christine Littlefield, past Board chair, was presented the award by Margaret McGovern. Margaret spoke of Christine’s many activities with BFO-Toronto: as an advisor to parental groups, chairing PAC, her work with the Grief Training Institute and sitting on both the Toronto and Provincial Board of Directors. She also spoke warmly of their friendship which began many years ago: “I first encountered her when we were both asked to meet with Dr. Stephen Fleming's class on death and dying at York University. That evening I learned much about what our family would experience as a family who had lost a beloved child. Her compassion and her desire to assist these students understand the experience of losing a child and how they could support someone who is grieving were significant learning opportunities to me.”

BFO-Toronto's choice for the Provincial Volunteer Award of 2002 was Faye Thorek. Again, Margaret McGovern spoke of Faye’s long time commitment and dedication to BFO-Toronto including her work facilitating support groups, working with PAC and sitting on the board. Most significant was that Faye was instrumental in the initiating of our Infant Loss Program, as she recognized that parents who have lost a baby in the perinatal period have some needs and issues that parents who have lost an older child do not encounter. Faye continues to be active in this program, as well as in supporting other areas of BFO-Toronto, like our fundraising events.

BOOK REVIEW

“Bereaved men are often desperately lost."
So begins the book, Making Meaning of the Madness
a journey into a Father’s grief at the loss of his son Jeff, by bereaved father Dan Lundine.

The dominant theme of this book is the sense of failure: of being unable to protect, being unable to change the course of events that would still leave our lives as they were. Instead we are thrown into this never-land of fear, self-doubt, and retreat. Mr. Lundine identifies all the confusion and anxiety that, while not unique to fathers, one knows in reading of the madness that he speaks as a Father of the things we all know but rarely talk about deeply.

Making Meaning of the Madness would be a wonderful place from which to start understanding that a man's feelings (often unexpressed and rarely encouraged) are as complex, deep and troubled by loss as anyone else's. We are not always strong or stoic, we bleed, but there are unique aspects of our loss that strike at the core of who we are and which rarely receive validation - particularly from other men. To read this book is to understand that private pain that we rarely share, lest we are overcome.

Whether as a source for individual guidance or as a primer for a men's group on loss and grief, Making Meaning of the Madness raises all the right issues. It is a book from which one can find solace and hope. For even in the madness of being alive while your child is dead, there is still hope of new perspectives and deeper meanings for the rest of life to be lived.

Des Mackle (Kevin's Dad)
BFO-Toronto Parental Facilitator

Planned Giving Seminar at BFO-Toronto Office on September 19, 2002 at 7.00 p.m.

Some of our members have been requesting information on Planned Giving, of which Bequests are only a part. A Planned Giving Program is a vehicle for you to ensure that your philanthropic objectives are met, without significant cost to family and friends, whom you also want to remember in your will and it is an investment in BFO-Toronto’s future. We have, therefore, made arrangements for a qualified, financial consultant to discuss, with interested people, the many options (including tax benefits), that are now available. If you would like to attend this seminar, please call our office and speak with our Development Officer, Adrienne Vance 416-440-0290.

Congratulations!

Brenda (daughter of Betty and Bruce Catchpole) and her husband Randy Martens had a baby, Rachael Jane on July 6th. Weighing in at 8 pounds 2 ounces at birth. We hear that she looks very much like her 2 year-old brother (Christopher) did when he was that age.

All are doing well thankfully, Nana and Papa are glad to be there in Winnipeg helping them to celebrate this most important birth.

BFO-Toronto News

On June 20, 2002 we held our 23rd Annual General Meeting. BFO-Toronto membership passed A New By-Law No. One and approved a name change from Bereaved Families of Ontario – Metropolitan Toronto to Bereaved Families of Ontario – Toronto. We said ‘good-bye’ to several Board Members - Allan Cole, who had been Chair of the Board, Joe Isgro, Mary Gallello and Irene Clarfield. We thank them all for their generosity of time and spirit and their commitment to BFO-Toronto. We also welcomed three new Board Members – Michael Healy, Lynn Belanger and Jim Cardinal. John Bickley, was voted in as the new Chair of the Board. This Board will take BFO-Toronto into a new year, full of promise and new opportunities.

One of these opportunities is an assessment of our services and programs, which will be conducted over the next six months. The idea originated from our members, at a Strategic Planning day, held in January of 2001.Through a grant, submitted by Gloria Murrant, to the Trillium Foundation, we obtained the financial resources to hire consultants to do this major and crucial project. We want to know how we can better support people, who have experienced a death in their family, and to do this we will:

  • Look internally and ask staff, volunteers and members what works and what doesn’t.
  • Look externally to find out how we can better serve the diverse community of Toronto. We will choose three target communities, with whom we want to start this consultation process.

In order to obtain the necessary information, some of you will receive a mailed survey, some will be telephoned and some will participate in a focus group. These activities will provide us with valuable data. We want and need your perspectives, thoughts and ideas, so please participate.

Although the past few years have been difficult for Bereaved Families, in 2003 we will be celebrating our 25th Anniversary. During this very special year we will be reaching out to the community; revitalizing established relationships and building new ones. We will be celebrating the spirit of survival!

Janet Wilson, Executive Director

Dates to Remember
Monday Aug. 5 11:00am – 5:00pm Fundraising Day at Mosport
Wednesday Sept. 4 7:00pm – 9:00pm Young Adult Drop-in
Wednesday Sept. 11 7:00pm – 9:00pm Family Support Night
Wednesday Sept. 18 7:00pm – 9:00pm Infant Loss Drop-in
Thursday Nov. 14 6:30pm onwards Big Night Out at The York Event Theatre

This newsletter is produced for our members and supporters. Our newsletter is available by mail and email.
We welcome submissions, please forward to Laura Larsen (llarsen@bfotoronto.ca).
We reserve the right to edit items submitted for publication

We are grateful to the
Toronto East Rotary Club
for funding the production of this newsletter.

Return to homepageReturn to BFO Toronto home


We receive partial funding for our programs from
The Ontario Trillium Foundation The City of Toronto



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